In November 2015 I filmed an activity weekend for the A-T Society
(Ataxia
Telangiectasia). I had never heard of this condition
before. I was approached by the CEO William Davis in 2013, he was
interested in presenting thoughts and feeling from those living with the
condition, rather than it being a medical perspective. I was obviously
intrigued and started looking through whatever information I could find on the web
about this condition.
Ataxia-Telangiectasia (A-T) is a progressive genetic condition
which causes severe disability. The A-T Society
works to improve quality of life and care for people living with
A-T.
Three films have been produced two are below:
Winner - Disability Issue Film at the Tagore International Film Festival
The final film People like me
Young people with Ataxia Telangiectasia, a rare, disabling and life - shortening condition, talk about how they overcome the challenges and live their lives to the full. As the condition affects almost every aspect of their lives, including speech it is hard for them to get their voices heard but here they talk movingly about how they live their lives and what inspires and motivates them. Filmed during an activity weekend in 2015.
People like me
People like me
These productions have been supported by Pizza Hut Delivery
Screenings:
People like me
2016 (September 4th) Evening screening at FERFILM International Film Festival (Open Air Cinema)
2016 (November) Broadcast on Virgin 269, Sky 539, Freesat 651, Freeview 63and Freeview HD.
2016 (October 21st - 23rd) screening at 23rd International Independent Film Festival , PUBLICYSTYKA, Poland
2016 (October 21st - 23rd) screening at 23rd International Independent Film Festival , PUBLICYSTYKA, Poland
2020 October Tagore International Film Festival, India
From Pizza to Piste
September 10th at Portobello Film Festival 2016
Website:
